Tonight’s DFMC Team Meeting

Tonight’s DFMC meeting provided the team with some insight on nutrition and mental training. A nutritionist and a sports psychologist spoke about these issues. The nutritionist told us to eat whole grains, drink water, have vegetables, and eat protein in a daily meal. Also, she told us to have carbohydrates before our runs for fuel and have protein after our runs for recovery.  Lastly, for before the marathon she told us to eat carbohydrates 5-7 days before the marathon, carbo load 3-4 days before the marathon, and have water the day before the marathon to hydrate. On the course, she told us to listen to our bodies and drink and eat whenever possible. After the race, she told us to drink liquids then eat food.

The sports psychologist when he spoke it really hit home. He talked about overcoming adversity and to not give up on our training. I have had a lot of physical challenges in my life and doctors told me when I was younger I would not be able to walk or even talk and I have overcome these challenges. I am lucky to be where I am today to have this opportunity to run with this amazing team.

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Training Tuesday and the Gift of Snow

Tonight I went to the gym after work and did 10.4 miles on the arc trainer. I would have gone to the gym this morning but the commuter rail trains were delayed over an hour or cancelled and my husband Adam ended up driving me to the green line to get into work so I decided to get my mileage in after work.

In the Boston area, we have received over three feet of snow. A lot of people are either tired of seeing it and others find it calming especially if you have never lived in the Northeast and this is the first time you are seeing snow.

However, for one little boy snow is a gift.
Fighting a rare form of skin cancer, unable to romp and play in sunlight, Reef Carneson, 6, experienced a true, boyhood delight Monday morning for the first time. He saw snow.

Watch this video it will put a smile to your face like it did mine: http://m.wlwt.com/news/boy-receiving-cancer-treatment-sees-snow-for-first-time/31302930

Heartbreak Hill on Valentine’s Day

Today I ran in Chestnut Hill on Heartbreak Hill. The DFMC ran from Boston College to the Newton Fire Station and back and forth. I ran 14.30 miles with some of my DFMC friends and this was the coldest run I have ever done. It was -4 degrees outside and my hands were frozen. Below, are pictures from today’s run.

It is valentine’s day so the picture of me and the gorilla is in honor of the holiday. The gorilla’s name is Bill because his store called the Heartbreak Hill Running Company is located at the top of Heartbreak Hill and he is the mascot and the other picture is me kissing my husband Adam who volunteered today!

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First Evening Run This Season

Yesterday morning my train that I usually go on to head to the gym before work was cancelled because of issues with the MBTA and the massive amounts of snow. Instead, I went to the gym after work and put in 10.4 miles on the arc trainer. I will put in more miles on Saturday (13 miles or more).

Today’s question is related to staying healthy during the winter season. How do cancer patients stay healthy during the cold winter months?

As the cold weather approaches, concerns about cold and flu season increase along with people’s thermostats. About 30 percent of people in the United States come down with the flu every season, and 200,000 of them are hospitalized because of serious complications such as pneumonia. If you have cancer, you are at risk for the same cold weather problems as other people, but your chances of getting sick are greater because cancer treatments, such as chemotherapy radiation therapy, can weaken your immune system, making it harder for your body to fight infections properly.

Here are a few ways to safeguard your health in cold temperatures.

Studies have found that influenza and cold viruses, as well as stomach flu (gastroenteritis), survive better in cold weather, so the best defense is a good offense: take measures to avoid getting these viruses.

Flu Shot

Cancer patients undergoing treatment and cancer survivors receive an annual influenza vaccine. Talk to your doctor about whether you should get the influenza vaccine.

There are two types of flu vaccines: a needle and a nasal spray. The nasal spray is made from a weakened form of the virus and should not be given to cancer patients.

Cancer patients undergoing treatment and cancer survivors receive an annual flu shot. The needle (“flu shot”) is made from a killed virus, so it cannot make you sick. However, it takes about two weeks for your immune system to develop the antibodies that protect you against the flu. Sometimes when people get a flu shot, they already have been exposed to the flu, but don’t know it yet because they don’t have any telltale symptoms. They get the shot and begin getting flu symptoms in a few days, leading them to think the shot made them sick. However, this is just a coincidence. Because of the way it’s made, the flu shot cannot make you sick.

After you get the flu shot, your arm will probably be a little sore from the injection and you might get a slight fever and feel tired, but that’s just your body building antibodies.

The cold and flu season runs from about October to May in the United States. Therefore, the best time to receive the flu shot is in October or November, but the CDC says that the shot is still good even if you get it later in the season. In the past, people have gotten extra flu shots that protect against various strains of the disease, as seen in recent years with the vaccine against a novel virus called H1N1 (swine flu). Because the normal flu shot does not protect against H1N1, a second shot is required to protect yourself against this strain of the virus.

Your family, friends, and caregivers, including children, should also get the influenza vaccine if you see them frequently, so that they can’t give you the flu.

Unfortunately, the flu shot only protects you from influenza and not the hundreds of viruses that cause colds and stomach flu.

Practice Good Hygiene

A good way to avoid all viruses–influenza, colds, and stomach viruses alike – is to wash your hands frequently. Use soap and warm water and scrub your hands for 15 to 20 seconds (about the time it takes to sing “Happy Birthday” or the alphabet song). Rinse them well and dry them with a paper towel.

Wash your hands after going to the bathroom, touching someone—including after shaking hands—and before you eat. You should also wash your hands before you treat any wound or infected area on your body.

If you don’t have access to soap and water, use a hand sanitizer, but make sure that it contains 60 percent alcohol.

Other easy ways to keep from spreading germs are to cover your nose and mouth with a tissue when you cough or sneeze. If you don’t have a tissue, cough into your arm instead of your hands. Also avoid touching your eyes, nose, or mouth.

If you think you have the flu, see your doctor immediately. Your doctor can prescribe antiviral drugs that shorten flu sickness by a few days, but to be effective, you must begin them within 48 hours of showing symptoms. You should then stay home until you feel better, not only to avoid making your illness worse, but also to avoid spreading the germs.

Take Precautions

Postpone visits with friends and family who are sick until they feel better. Keep a stock of over-the-counter medicines, hand sanitizer, and tissues on hand in case you get sick. Be sure to consult your physician for a list of over-the-counter medications that will not interfere with your treatment.

Besides washing your hands to avoid gastroenteritis, practice good food safety if you are getting or have recently finished cancer treatment. Be extra careful when handling, preparing, and storing food, and wash the counter or surface where you prepare your food with hot soapy water or antibacterial cleanser.

During the winter, it is important to stay hydrated, so remember to drink lots of water and other non-caffeinated beverages like juice.

Avoid Extreme Cold Temperatures

Some medications, conditions, and side effects caused by cancer treatment, such as dehydration, can interfere with your body’s temperature, and people who are less active can have reduced blood flow. In addition, cancer treatments can affect your nerves, making you less sensitive to extreme temperatures. These put you at risk for hypothermia and frost bite.

Hypothermia is abnormally low body temperature. When you are exposed to cold temperatures, your body begins to lose heat faster than it can produce heat. Low body temperature can affect your brain, making it difficult to think and move well. Symptoms in adults are shivering, exhaustion, confusion, fumbling hands, memory loss, and slurred speech.

Frostbite is an injury caused by freezing. The risk of frostbite is increased in people with poor blood circulation and those who are not dressed properly for extremely cold temperatures. Signs of frostbite are a white or grayish-yellow skin area, skin that feels unusually firm or waxy, and numbness.

You can avoid hypothermia and frost bite by spending less time outside when the temperatures are near freezing or if there are high winds or rain. If you do go outside, dress in layers and always wear gloves or mittens and a scarf. Always wear a hat that covers your ears, especially if cancer treatment has caused hair loss. The areas most prone to frost bite are the fingers, toes, and ears.

Sweating is a side effect of some cancer treatments. If you sweat a lot, change your wet clothes and bed sheets often to stay warm and dry. And remember to drink plenty of non-caffeinated fluids.

Radiation therapy and some chemotherapy also affect your bones, so you may be at higher risk of breaking a bone if you fall on the ice. To stay strong, bones need vitamin D and calcium. Sunshine is one of the best sources of vitamin D, and you only need to spend about 10 to 15 minutes outside to get the recommended amount of vitamin D. You can also eat foods that are fortified with vitamin D. Talk to your doctor about taking a vitamin supplement if you don’t think you are getting enough vitamin D.

Take Care of Your Skin

Cancer treatments may make your skin dry, itchy, and cracked, which is worse in the winter because the humidity level drops. Use a moisturizer frequently and if your lips are also dry and cracked, apply lip balm. Use gentle soaps and laundry detergents and avoid long, hot baths and showers. Consider using a humidifier.

Much of what you need to do to protect your health is common sense, but the key is to make these strategies part of your regimen during the winter.

Group Run in Chestnut Hill/Workout for a Cause

Yesterday, I ran in Chestnut Hill on Heartbreak Hill. The DFMC ran from Boston College to the Newton Fire Station and back and forth. I ran 16 miles with one of my DFMC friends and this is the longest I have run this marathon season. It was great feeling being able to run outside and the weather was cold but it was great running weather. Below, are pictures from yesterday’s run.

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March 7, 2015, I am having a fundraiser at GymIt called workout for a cause.
This event is open to the public and is located at:
GymIt – 920 Commonwealth Avenue, Brookline MA, 02446

GymIt is hosting three FREE workout sessions to benefit the Dana-Farber Cancer Institute. Each person who signs up has a free will option to donate to the fundraiser and 100% of the proceeds will go to the Dana-Farber Cancer Institute.

The classes are:

9:00 AM TRX

10:00 AM Bootcamp

11:00 AM TRX

Please sign up at the front desk and bring your friends, co-workers, and family members! It will be a fun time!

GymIt validates parking for people who park in the garage which is located at 131 Dummer Street, Brookline, MA.

Bring your parking voucher to the front desk to have it validated. Parking costs $1 an hour for up to three hours. (Cash only)

Otherwise there is street parking with meters.

Saturday Run

It was way to icy to run outside and the group run had a location change so instead I went to the gym with a fellow DFMC runner Heather to put in our mileage. I put in 13 miles on the arc trainer with the 4.68 miles I did on Monday and 10.4 miles I did on Wednesday I am at 28.08 miles for the week which is the maximum amount of mileage on my team’s training schedule. I’m in great shape!

Next week, the team will be running in Wellesley at the Boston Sports Club and I look forward to running with my teammates again.

Weight Wednesday

Today is Weight Wednesday. I decided to not lift today just in case the group run is canceled in Saturday. Instead I went to the gym and did 10.4 miles on the arc trainer since the running conditions outside are still horrible from yesterday’s storm leaving Massachusetts with about three feet of snow.

Today’s question relates to strength. How do cancer survivors thrive on inner strength?

What is resilience? For a cancer survivor, it might be defined as the ability to recover, the strength to move forward, and the awareness of the needs of your own body.

Resilience is a strength that comes from within and is self-motivating. Research has shown that cancer survivors, when questioned, many times identify their own inner strength as one of the primary sources of strength as they experience and recover from a cancer diagnosis and treatment.

Many cancer survivors can identify with this concept, although it may be hard to put into words at first. Here are a few thoughts to consider as a cancer survivor reflects on their own resilience:

How do you bounce back from difficult situations?

What are your coping mechanisms?

How do you gain strength and courage to move forward?

What motivates you?

Are you able to ask for help when you need it?

What is your support system?

What inspires you and makes you feel whole as a person?

Cancer survivors have this amazing ability to survive and thrive despite the physical and emotional stress of cancer.
If there are any cancer survivors who are reading my blog please share your thoughts on this topic. I would love to hear your opinion on what you feel is resilience and how this inner strength has helped you in your experience.

Motivation Monday

Today is Motivation Monday. This morning I went to the gym and did the arc trainer for a half an hour since I had a doctor’s appointment this morning. I did 4.68 miles in a half an hour.

Today’s question relates to cancer patients getting a cold. What happens if cancer patients get a cold while on chemotherapy?

When a cancer patient is undergoing chemotherapy treatment, it almost always lowers his white blood cell count. Sometimes this happens only for a short period of time and the white blood cell count bounces back, other times it becomes an ongoing problem. Because white blood cells are the body’s weapons against infection, having a low white blood cell count weakens the cancer patient’s immune system. This means that when cancer patients catch a cold or flu, if their white count is low, they may not be able to fight off the infection as well as they normally would.

In this case, a cold or flu can quickly become more serious, leading to a high fever, pneumonia, or other complications. It’s important for caregivers to understand the causes and symptoms of low white blood cell counts, so we’ve put together a longer article on the subject with more information.

When you’re caring for a cancer patient and he catches a cold or flu, watch him closely for signs that the illness is becoming more serious. If his fever rises above 100 degrees or he develops a cough, chronic headache, or other symptoms of a bronchial or sinus infection, call his doctor.

Sunday Funday

Today is Sunday Funday. Unfortunately the group run was cancelled yesterday so today because the roads are still very icy I am putting my miles in on the arc trainer. I plan on doing 14.2 miles on the arc trainer today plus adding on the 7.8 miles this week will be a total of 22 miles for the week.

Today’s question relates to fatigue. What causes fatigue in cancer patients?

What is fatigue?

Fatigue can be confused with tiredness. Everyone gets tired. In fact, it is an expected feeling after certain activities or at the end of the day. Usually, we know why we’re tired and a good night’s sleep will solve the problem.

Fatigue is less precise, less cause-and-effect. Fatigue is a daily lack of energy; an unusual or excessive whole-body tiredness, not relieved by sleep. It can be acute (lasting a month or less) or chronic (lasting from 1 month to 6 months or longer). Fatigue can have a profound negative impact on a person’s ability to function and quality of life.

What is cancer-related fatigue?

Cancer-related fatigue (CRF – sometimes simply called “cancer fatigue”) is one of the most common side effects of cancer and its treatments. It is often described as “paralyzing.” Usually, it comes on suddenly, does not result from activity or exertion, and is not relieved by rest or sleep. It may not end – even when treatment is complete.

What causes CRF?

The exact reason for cancer fatigue is unknown. CRF may be related to both the disease process and treatments, including surgery, chemotherapy, and radiation therapy. Cancer treatments commonly associated with CRF are:

Chemotherapy. Any chemotherapy drug may result in fatigue. This may vary from person to person. Some people say it lasts only a couple of days. Others feel the CRF persists through and beyond completion of treatment. Drugs such as vincristine, vinblastine, and cisplatin often cause CRF.

Radiation therapy. Radiation therapy can cause cumulative fatigue (fatigue that increases over time). This can occur regardless of treatment site. CRF usually lasts from 3-4 weeks after treatment stops, but can continue for up to 2-3 months.

Bone marrow transplant. This aggressive form of treatment can cause CRF that lasts up to one year.

Fit Friday

Today I went to the gym and went on the arc trainer for an hour. Tomorrow a big snow storm will be hitting Massachusetts so I am waiting to hear if the group run will still occur. Unfortunately, what this means is that the Patient Partner Meet Your Match Party is cancelled as well. I will have to wait and give everyone an update once I meet my patient partner and provide as much information as I can about him.

Today’s question relates to winter weather workout. What can cancer patients do in the winter for a workout?

If it’s not too cold:

  • Take the dog for a walk.
  • Try a winter sport, like skiing, snow-shoeing, or ice-skating.
  • Shovel snow. (Shoveling snow can be really strenuous. If it’s been a while since you’ve exercised regularly, discuss your plan and your health with your doctor.)

If it’s unbearably cold outside, try these indoor activities to get your heart pumping:

  • Meet a friend at the mall and walk some laps.
  • Do leg lifts or sit ups while you watch your favorite TV show.
  • Put on your favorite music and dance.
  • Clean your house. Scrubbing, mopping, and vacuuming all burn calories.

Adults should engage in at least 30 minutes of moderate-to-vigorous physical activity – above your usual day-to-day activities — on 5 or more days a week. Forty-five minutes to an hour is even better.

If you do plan to spend a lot of time outside, remember to tuck a tube of sunscreen in your winter coat.

While some of us may only think of sun protection when we’re spending a lazy summer day by the pool or at the beach, ultraviolet (UV) rays don’t disappear when the temperatures drop. While the sun may not be as strong in your part of the world during the winter months, its UV rays are reflected off of water and snow, and they are just as damaging now as they are in summer.

The most important way to lower your risk of skin cancer is to protect yourself from UV rays. That means a number of things: remembering to cover your head, wear sunglasses, and apply sunscreen with an SPF factor of 15 or more to any part of your body that’s exposed. Put it on before you go out, and reapply it 20 minutes later to be sure you’re covered. And don’t skip it just because it looks overcast outside: UV light still comes through on hazy days.

And don’t forget to protect your lips by using a lip balm with SPF. Protect your eyes by investing in wrap-around sunglasses with at least 99% UV absorption to block damaging UVA and UVB light.